In the Darkness

I keep thinking this will be the day that I wake up without the darkness invading my mind. I know you can't see it, but it's there.

Why? Because we live in a fallen world with broken bodies. Why me? I don't know. My body is broken. Fibromyalgia robs my body of serotonin. Then Seasonal Affective Disorder (SAD) robs me of norepinephrine, dopamine & even more serotonin. I've started on meds to help replenish those vital brain chemicals, but it takes time.

The "feelings" caused by the lack of those chemicals are in stark contrast to reality. Loneliness, sadness, despair... It's a constant battle to not give in, to not just go with those feelings or to just stop feeling... to withdraw from everyone & everything... To curl up in a ball and cry... Or to yell & scream at everyone around me... Or to keep myself so busy that I can't think...

On top of these feelings comes the guilt, fear, shame... "You are so blessed, why are you down?" "Just snap out of it!" "Depression is a sin" "Christians don't take anti-depressants" "anti-depressants will hurt you, use herbs/oils/prayer instead" "you're hurting everyone around you" "they'll all think you're crazy if you let them know you're depressed" "pretend everything's okay" .........voices that echo through my head from myself, others & the Internet.

It will ALL drive you to Sanity's Edge!!!

So I fight...

....I told my Hubby I'm struggling. Admitting it is a big step!

....I went to my doctor who is overseeing my meds.

....I journal when I can. Or in this case, blog.

....I get out in the sunshine when I can.

....I talk with those I know who have been/or are going through depression. It's a big help to know I'm not alone in this struggle.

....I'm trying to speak up about my struggle. Bringing it into the light helps loosen its grip. It also may help someone else who is struggling.

....I have a few people praying for me as sometimes I can't pray myself other than "Help me God!"

....I'm trying to eliminate as much stress as I can, which is pretty hard.

 

Some days I win the fight... Some days I lose it... Most days I'm barely hanging on but fighting for every inch...

...fighting to get out of bed instead of sleeping all day. ...fighting to smile instead of cry. ...fighting to concentrate on what others are saying instead of what my mind is saying. ...fighting to be outgoing instead of hiding. ...fighting to listen to reality instead of the "voices" of guilt & shame. ...fighting to let things roll off my back instead of taking everything to heart. ...fighting to beat this depression instead of slipping over sanity's edge.

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Fighting

I'm not sure why this flare-up has been so hard on me. Maybe it's because I'm getting older. Maybe it's because I've gained even more weight. Maybe it's just because I've had 3 different doctors convinced it was 3 different diagnosis & lab work proved them wrong. Maybe it's the wasted time & money. Maybe it's the overwhelming fatigue. Maybe it's all the well-meaning "advice" on how to get better. Maybe it's hormones on top of everything.

No matter the reason, it has been hard. Part of me feels guilty because I am struggling so much. So many others have it so much worse. Losing loved ones, fighting cancer, losing limbs, fighting illnesses that destroy your body, being told "there's nothing more we can do", etc...

So today I'm fighting:

• The fatigue that threatens to drive me back to bed
• The guilt for struggling so much over this
• The uncertainty of when the next severe symptom will hit
• The fear of what the next new symptom will be
• The urge to give in & not fight
• The tears that seem so close to the surface all the time
• The frustration at having to watch my kids react to my health issues
• The depression that threatens to close in
• The isolation that calls me to retreat & avoid people/places
• The anger over having to deal with this that boils to the surface & threatens to erupt

Why do I not give in? Why do I fight? Because I have hope! I know there is more to life than this. This life of pain/suffering/brokenness is not forever! It is only for a brief moment!

Over 2,000 years ago, a little baby was born in a stable in Bethlehem. But He wasn't just a baby, He was God! He became man so that He could experience every trial, anxiety, fear & suffering that we face. He became man so that He could take MY sins on Himself and suffer and die for me as a sacrifice! As MY sacrifice! Then He rose from the dead! He defeated death!! Because He defeated death, I have life! I need not fear death! Because He is my Savior & Lord, I have eternal life! Once this life is over, I get to spend eternity praising & worshiping my God & Savior! Not only that, but in eternity there will be no more fighting! No more pain! No more anxiety! No more fear! No more anger! No more frustration! I will be whole!

Until then, I will fight the good fight!

12 Fight the good fight of faith, lay hold on eternal life, to which you were also called and have confessed the good confession in the presence of many witnesses. (I Timothy 4:12)

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Struggling!

Let me start with the more positive stuff. I had my neurologist appointment that my Hubby set up for me after all my bloodwork came back mostly normal. I know nothing new yet, but I'm scheduled for a brain MRI & cervical spine MRI at the end of the month. Hopefully in 2 weeks I'll start getting some answers.

Now to my struggles. I have to say that I'm doing fairly good coping with the physical symptoms of numbness, tingling, pins & needles and burning. The weakness, on the other hand, is causing me some struggles.

Walking slow because I feel unsteady is the worst. I've always been able to walk through my symptoms. Now I'm struggling to walk across a room without something to hang onto. When I do have something to hang onto, I wear out very, very quickly.

From the outside, I look okay. I have put on some more weight (which is part of my struggling), but I don't look sick. It's the hidden things that make it hard. I get overstimulated easily which makes a roomful of people hard, or even just my kids all talking at once. My brain works slower than normal. A simple thing like taking sermon notes becomes almost impossible because my hand can't keep up with my brain which can't keep up with what I'm hearing. I'm finding my spelling skills have deteriorated. My vision is blurry a lot of the time & I sometimes feel off-center.

I'm only 42 (almost 43), but I feel like I'm 80! I hate that my kids are worried about me. I hate that my kids have to fix their own meals many days. I hate that I'm at my highest weight ever (even higher than my full term pregnancy weight)! I hate that i feel ugly because of this & because all my clothes feel tight & small! I hate that my Hubby has to worry so much about me. I hate that my Hubby has to carry much of the load around here when he's home from traveling. I hate that my parents have to come up & help me when I should be helping them! I hate that I don't know how to let my friends help me even though lots of them have offered. I hate that we (my family) can't do a lot of things because I don't feel up to it. I especially hate that I don't know yet what I'm fighting so I don't know HOW to fight it!

So for now, I have a good cry then just try to get through each day until I have answers. I try not to give in, not to play the what-if game, and not to dwell on myself too much! I'm so blessed & have so many who love me. I KNOW God is in control & there is a reason why I am here & going through this. But even though I know this, I still waver. I still put my eyes on myself & my problems. I still struggle! So pray for me! And let me know how I can pray for you.

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God is Faithful

As I've been struggling a lot with my health recently, God has been reminding me more & more of His Faithfulness! The following video has become a new favorite of mine. It's called "Never Once" & it's by Matt Redman.

Many times, we walk through trials that overwhelm us. Yet when we stop looking at our trials & look up, we see that God has been there all along! He never promised us an easy life. But He did promise that He would walk with us through each & every trial.

I've been through many trials, especially in regards to my health. I can testify that Jesus has been faithful! He walked with me through the darkest nights. Because I've seen His faithfulness to me, I know He will carry me through whatever the future holds!

Come to Him! Cling to Him! He is faithful & will see you through each & every trial! It may not be the outcome you want, but He will be with you every step of the way. God is Faithful!!!

 

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Meds, side effects & more

So much going on with my health & I haven't felt up to posting.

On Jan 28th, I was switched from Celexa to Wellbutrin because the Celexa was fatiguing me. Since I started on the Wellbutrin, I have had headaches every day. It took me till yesterday to think it was probably a side-effect. So after contacting my doctor, I am stopping the Wellbutrin now & seeing him on Monday morning.

Between hormones, headaches, depression & pain from crazy weather, this has been a rough year so far. I'm usually fairly even keeled & seem to be able to ride the storms of fibromyalgia. But this has been hard. Rather than be constantly negative & posting how bad I feel, I've chosen to just be quiet.

I know God has a reason for me going through all this. But sometimes it's hard to see the big picture. I know that I am very blessed. I know my struggles are are very small compared to a lot of others. So many are facing cancer, MS or worse.

But in the midst of the pain, my outlook becomes cloudy. I have to work harder to keep my mind focused on Christ. Only then can I walk through this life.

 

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Update

Sorry it's taken me so long to update. I've been on my anti-depressant for over a month now. It has been a big improvement in my moods, but it made me so tired all the time. I saw my doctor on Monday. He cut my dosage in half. If I stay stable on this & my tiredness disappears, then great. If not, my doctor has promised to work with me until we find a med that doesn't cause me side-effects. Have I told you that I love my doctor??

On top of all this, I got sick after Christmas. It was just a stuffy nose until New Year's Day. I really think I got worse because I was so worn out from Christmas, cleaning house, company & NYE party. I often forget that overdoing causes my immune system to be out of whack, more than normal.

So now I'm on antibiotic for a sinus infection. Getting better has been a very slow process. Definitely slower than I want. Hubby is actually home this month. I want to be feeling better so we can do things as a family & I can enjoy him being home.

So that is my update. Some days are a struggle. Some days are better. But through it all, I know that my God will carry me through each day. He is so faithful! Even when I feel horrible, I know God is taking care of me. Sickness, depression, pain.... They are all the result of living in a fallen world, a world marred by sin! It's not the way God created it. And one day, He will come back & make it all whole again! This world will be perfect! I will be perfected in Him! No more pain, no more depression, and no more sickness!

It's the hope of His return, that makes this all bearable! I know I am God's & He is my Lord & Savior! One day I will be healed! This life on earth is just temporary! This knowledge is my joy! My God is the King of Kings & Lord of Lords! It is for Him that I live! No matter how bad I feel, I will praise Him! Through good & bad, sickness & health, I will praise & worship God! Why? Because He is worthy of praise! He is God!

I will praise you, O Lord , among the nations; I will sing of you among the peoples. For great is your love, higher than the heavens; your faithfulness reaches to the skies. (Psalms 108:3, 4 NIV84)

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The big "D" word!

Fall has almost skipped us here in Indiana. We went from 80+ degree days to days in the 30s & 40s. Except for a mild day every once in awhile. What I wasn't ready for was the sudden onslaught of "winter symptoms". You know, the increased aches & the depression. Add to that hormone issues & you get a big mess.

You'd think after a lifetime of this, I would be prepared. I wasn't. And my family, especially Hubby, paid the price. What price is that? A grumpy, sad, tired, sick me. When I'm down, so is my whole family. The worst part is that I can see myself in this rut, but I can't get out.

I'm doing better the past few days. My Hubby prayed over me & my hormones have stabilized. We also had a few gorgeous days with lots of sunshine. I was able to walk some over the weekend. But I can see it's going to be a tough winter.

It may be time to get an anti-depressant. As most of you know, Fibromyalgia suffers already have low serotonin. Add Seasonal Affective Disorder (SAD) to it & my serotonin levels bottom out when the sunlight hours get short.

I truly hate medication, but there are times when I need it. My mind tells me I am being weak, but my heart is telling me that I need to do this for myself & my family. It's hard to admit you are depressed & need meds. People (including myself) judge you for taking anti-depressants & for being depressed.

I know that I am truly blessed. I have everything in the world to be joyful for. I am grateful. But I also know my joy is not based on my circumstances or health. You can be joyful but still be depressed. So I must seek help from my doctor.

Yes, I'm blogging to convince myself what I need to do. And just maybe, my struggle will help someone else in the same situation.

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The difference support makes!

After church today, I was thinking back 15 years to when I was waiting for another diagnosis. My situation was different in many ways then. We were still childless & I was off work on disability. We also were NOT plugged into a local church. And this was before twitter & Facebook. I had my Hubby & our families, but that was the extent of my support.

Today, waiting for diagnosis is still hard, but I am surrounded with love & support from many sources.

1. I have the most incredible husband! He loves me so much. He's so patient with me when I fall apart. He has picked up so much of the responsibilities here at home when he is home. He sees the tears & hears the fears I'm afraid to voice with anyone else. He is my rock!

2. I have awesome parents & in-laws who are helping with the kids & with whatever we need help with.

3. I have a great church family. I didn't have this 15 yrs ago. I'm overwhelmed by the offers of help. I've had offers for meals, childcare & housework. Now to figure out what help I need & when. I also know we are being covered with their prayers.

4. I have a ton of friends online supporting me. Childhood friends, college friends, family, church family & Internet friends. When I'm struggling, I can make a quick post. Then I'm covered in prayers & receive tons of encouragement.

This 2nd time of new symptoms & diagnosis waiting is still difficult, but the additional support I have is making an incredible difference. I'm having moments of fears & tears, but nothing like the crushing fear & depression I had from fighting this fight with very little support. Don't get me wrong, my Hubby & our families were awesome support back then, but there was only so much they could do.

I think twitter & Facebook have helped too. Being able to post how I'm doing is helping me be open, honest with others. It's hard to admit face to face that you are scared & struggling. But posting online is a little easier for me to share. And I know someone will reply with just the thing I need to hear.

If you are going through something similar, I suggest surrounding yourself with a strong support system! The bigger support team, the better off you will be.

To all of my friends & family, thank you! Thank you! Thank you! Thank you for offering to help us! Thank you for your prayers! Thank you for your words of support & encouragement! Thank you for being there! Also thank you to those of you who are supporting my Hubby & the kids. I know health issues affect more than just me, so thank you. I'm so greatful for all of you! Your love and support makes all the difference in the world!!!

Good & bad update

I've been on the meds for depression/fibromyalgia for a week now. Friday & Saturday went really well. I felt like my old self & even caught myself humming. I just felt like a weight had been lifted off of me. I felt less irritable & even "happy".

Sunday I felt a little under the weather. I'm not sure if my sinus infection is back or what. Then yesterday I was so tired. I fell asleep on couch for 4 hours & woke up feeling horrible. I just wanted to go back to sleep. Today I have been real tired too. I'm not sure if it's another sinus infection or fibro-flareup or the depression.

Hubby left today on another business trip, so that could be part of why I feel a little blue. I hate that he has to travel but am so thankful he has a job in this economy.

I'm truly praying that this fatigue will pass & tomorrow I will wake up feeling how I did on Friday & Saturday.

I do have to say that I'm proud of myself today because I really just wanted to come home from taking Hubby to the airport & not do anything. But we did math & Bible for school work & I fixed supper (even though it was just TV dinners).

Just need to keep praying for God to carry me through this & for the depression to lift. I'm going to keep on fighting!